Living Life Daily

We Are Family – Special Needs Parenting – Parents Article

Every so often things on the home front would seem to fall apart a little. It got to a point that we could see a little pro-active check up might be needed from time to time. Living in a home where one person requires so much more time and attention than the others, it’s easy to neglect by default the very relationships you want to nourish! So, we found it wise to check up on those relationships to be sure…

Read More

No, He Won’t Get Better – Parents Article

Do you have those classic questions that people have been asking you over and over again since your unique parenting journey began? You know the ones I mean. That same thing or two you’ve heard people inquire year after year after year? I know that I have heard one relentless question since the day my son was first diagnosed with Hemophilia A – Severe 18 years ago — “Will he ever get better?” Somehow I think people just want their own…

Read More

When the World Stares at My Daughter – Parents Article

The little girl walking on the sidewalk ahead of us clutches her mother’s hand, but continues to turn around and curiously survey my daughter as she sweeps her white cane back and forth with each step she takes. I smile at the little girl and continue the conversation I’m having with my daughter. It used to bother me when strangers would stare. My daughter was born with her eye condition, Aniridia (which is the absence of an iris) and is…

Read More

The Sunny Side of Life – Parents Article

Each morning I make my husband Joe and I an egg. The goal is to make our eggs “sunny side up” but if (when) the yolk breaks, plan B is in effect: scrambled is served! And plan B happens most of the time! Similarly, every day caring for one with special needs is like that. That sums up our life – how about yours? Everyday we set out for “sunny side up”, hoping we’ve all awakened on the right side…

Read More