Latest-research

‘Foolishness’ plays a critical role in rehab ~ Special needs disability parenting BLOOM – Parents Article

isn’t usually taken seriously in a medical world grounded in science, expert knowledge and quantifiable outcomes. BLOOM: Why was there a need for this paper? Julia Gray: It came out of things I was observing anecdotally about the clowns’ role at Holland Bloorview, and in other hospitals, and reading in academic literature about how clown practice is framed. I was seeing a strange tension between admiration for the clowns and an attempt to legitimize them by framing them as a…

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When a child has 24-7 needs, mothers bear the costs ~ Special needs disability parenting BLOOM – Parents Article

An early photo of two of Sheila Jennings’ childrenBy Louise KinrossAs the mom of a son who had severe asthma and a life-threatening immune condition, Sheila Jennings learned firsthand that it was impossible to work outside the home and tend to her child with complex health needs. “My interest in the support rights of mothers of severely disabled children began after I got divorced and set up my law practice while caring for three children,” she says. “My son missed…

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Collective advocacy must replace mother-led campaigns ~ Special needs disability parenting BLOOM – Parents Article

By Louise KinrossA decade of activism by British mothers of children with disabilities hasn’t produced positive change in the lives of disabled people, write two researchers in a fascinating article this month in Disability and Society. The authors—Katherine Runswick-Cole and Sara Ryan (photo above)—are disability studies scholars and parents to children with intellectual disability. “Despite the efforts of countless mothers of disabled children, and others, over the last 10 years, the outlook remains bleak,” they write. “We live in a…

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Jess translates studies into words that families understand ~ Special needs disability parenting BLOOM – Parents Article

Jess Silver is passionate about health and how we translate research into words the average person can understand. She works as a research assistant in Holland Bloorview’s Prism lab, where one of her roles is to write and edit materials targeted to youth and families. We spoke about how her own experiences growing up with a disability inform her work. BLOOM: How did you get into this field? Jess Silver: My passion with medicine and health came out of my…

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